Surgery anguish: Paralympic hopeful Ben Clark in battle over treatment

TREATMENT BATTLE: Ben Clark at the Dolphin Pool in Poole. Picture by Corin Messer TREATMENT BATTLE: Ben Clark at the Dolphin Pool in Poole. Picture by Corin Messer

A PARALYMPIC hopeful is battling with health bosses to avoid major surgery as they refuse to fund a less invasive alternative.

Swimmer Ben Clark, 22, from Poole broke his neck after a freak diving accident at Sandbanks in 2010.

Faced with living the rest of his life confined to a wheelchair, Ben was determined to continue with his swimming, setting his hopes on competing in the Paralympic Games at London 2012.

However, last year his hopes were shattered after British Swimming ruled it had not been long enough since he had acquired his injury for him to be classified.

But now, just weeks away from the official classification, Ben faces a bigger battle with Dorset Primary Care Trust over how best to treat ongoing bladder issues.

Despite both his consultant urologist and local GP recommending Ben has a type of Botox injection to relieve the involuntary bladder spasms, the PCT refuse to fund the procedure.

Instead it is suggesting a major operation on his bladder involving a two week stay in hospital and prolonged recovery time for the Rio hopeful.

Ben said: “I just want to be given the chance to try it. To go from medication, which isn’t really working, to major surgery – it’s not right.

“If the injection doesn’t work then of course we will have to think again. But they should at least give me the chance.”

GP, Dr Ben Oxley, said: “I want what is best for my patient, and in my opinion that is the injection.

“The operation is major surgery and at this time, I don’t think that is appropriate for Ben but something does need to be done.

“The medications haven’t worked and the injection, which is used around the world in spinal patients, is the next stage.”

Consultant urologist at Salisbury Hospital, Mr Peter Guy said: “There is absolutely no doubt at all that Ben would be best served with some botulinum toxin into his bladder.

“It is best because it is simplest and because it doesn’t involve a major operation.

“The difficulty that Dorset PCT, and they are not the only ones as Bristol has the same policy, has is that the cutbacks are very deep.

“In some ways I cannot blame them but where I think they have made a mistake is that they have decided not to use it in isolation.”

The injection is approved by various worldwide bodies including most recently, NICE, who have published new recommendations for neurology patients, including the use of the injection.

Mr Guy added: “Whether or not NICE’s recommendations will influence the PCT, I cannot say.

“Generally speaking patients want what is less invasive. It is a very difficult issue and a tough decision-making process.”

  • A SPOKESPERSON for the NHS Bournemouth and Poole and NHS Dorset Cluster said: “For reasons of patient confidentiality we are unable to discuss details of individual cases.

“We are the commissioner of quality healthcare for people throughout the county and need to ensure that any treatment is clinically effective.

“The “Policy for Individual Patient treatment” sets out how individual requests for referrals outside of existing pathways are considered, and the commissioning principles on which decisions will be based.

“The full policy is available on the NHS Bournemouth and Poole and NHS Dorset websites.”

Comments(5)

polblagger says...
10:52am Tue 18 Sep 12

Can anyone explain how an injection can possibly be more expensive than a massive operation?

rudolph_hucker says...
11:14am Tue 18 Sep 12

I remember when Ben had his accident.
Sorry to hear of the current problem, but very pleased to see you still have spirit and determination to succeed, good on ya!

Morrigan says...
12:36pm Tue 18 Sep 12

Would the injection be available to Ben if he had a donation/collection to pay for it?

I live near his grandfather and having seen first hand how Ben copes with his life in such an admirable way, I can tell you there is no one more deserving of any treatments which will help him and I for one would certainly be willing to donate towards the costs - although having said that, I fail to see how the PCT can suggest a major operation is more cost effective than an injection!!!

afcb-mark says...
5:08pm Tue 18 Sep 12

“We are the commissioner of quality healthcare'' Oh Really! If that's the case give him the injections, less invasive and obviously cheaper. I think this young man has done well to fight back from this injury and now he has to fight the PCT. It makes me sick that we send £53 million in aid abroad everyday yet we can't look after our own. Just give him the injections.

manyogie says...
6:12pm Tue 18 Sep 12

polblagger wrote:
Can anyone explain how an injection can possibly be more expensive than a massive operation?
Er, hazarding a guess, injections would be ongoing, so not elegible to go to some 'cured' rating that Trusts have to meet, whereas the op will be deemed to have resolved the issue and added another point to the overall score that goes in the big file and never sees the light of day apart from its presence in some oft quoted percentage of sucess, or am I being cynical?

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