AN organisation based in Christchurch working to raise awareness on Huntington's has continued to spread the word in the community - as scientists make a massive breakthrough in trying to stop the disease.

Huntington’s Disease UK, which was set up by Hurn resident June Brown, hosted a successful Christmas event with residents earlier this month.

June has witnessed the impact of Huntington's Disease first hand having cared for her husband for the last 22 years.

She set up the non-profit organisation to help educate and bring awareness of the inherited neurodegenerative disease, which currently affects around 8,500 people in UK with a further 25,000 expected to develop it when they are older.

The group also looks to help newly diagnosed families with coping with disease and the different stages that presents throughout the long journey of challenges.

The free Christmas event held in Hurn saw Santa arrive in a vintage1929 Mercedes and hand out gifts to children.

Fireworks from Ferndown Fireworks also lit up the sky, while Damian from Pirates of Poole also provided entertainment for the children.

"It was such a success and everyone had a great time," June said.

"The firework display was absolutely outstanding and it was amazing to see all the children smiling in the Christmas spirit."

Days after the event, one of the children came to June's house to ask her if she had seen the news about the breakthrough in Huntington's research.

Scientists have been able to correct the defect which causes the disease in patients for the first time using a new experimental drug which is injected into spinal fluid.

The treatment by a research team at University College London safely lowered levels of toxic proteins in the brain.

It has been reported as having the potential to be the biggest breakthrough in neurodegenerative diseases for 50 years.

"The news is fantastic news for people suffering with the disease," June said.

"Also, it could change the lives of so many carers across the country who are looking after loved ones 24 hours a day, seven days a week.

"If this is as good as the first trial and it is all positive then there will definitely be a lifeline for people."