Story of ‘butterfly boys’ Harry and Cody Churchill to be told on Children in Need

11:00am Saturday 19th October 2013

By Diana Henderson

THE memory of two inspirational Poole brothers who died within days of each other is being kept alive by their devoted parents.

The story of Harry and Cody Churchill, who both suffered from a debilitating and painful skin condition, is to be told on the BBC Children in Need programme on November 15.

Harry, who was three, and his 21-month-old brother Cody died in March and their parents Steph and Chris almost immediately decided to go ahead with the broadcast.

Writing on the boys Facebook page they said: “When the boys passed we vowed to keep their memory alive. Their personalities were larger than life so it’s only right that we keep them remembered forever.”

Two months before the boys died the family was contacted by the BBC keen to tell their story and how children’s hospice Julia’s House had helped them.

“As we all know Harry loved the cameras. About 20 minutes after they passed we decided it would be right to still continue with Children in Need to show how important Julia’s House children's hospice is to families in their time of need,” they said.

They added: “Some people will think we are wrong for doing this but this was an opportunity to get our boys remembered all over the country.

“It wasn’t easy going over our story in front of the cameras but it was worth it.”

Both boys suffered from Epidermolysis Bullosa and were known as butterfly children, because their fragile skin would blister at the slightest touch.

Harry died at Julia’s House on March 13 and just two days later Cody succumbed to a serious infection.

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