When news happens text pix and video to 80360. Start your message with BE then leave a space.
Fund launched to support children’s palliative care across Dorset
A FUND has been launched at Poole to support children’s palliative care across Dorset.
Gully’s Place Trust Fund, registered under Poole Hospital Charity, aims to help from diagnosis to death, in hospital and at home.
“The work that Gully’s Place Trust Fund does is invaluable to parents at a time that no parent should ever have to go through,” said Poole Mayor, Cllr Phil Eades, who officially launched it at Lighthouse.
“Unfortunately, with around 400 children and young people living with life-limiting and life-threatening illnesses in Dorset alone, we need charities like this one. Gully’s Place could be there for any of us at any time.”
The trust fund is made up of three areas of work, a physical suite on the children’s unit at Poole Hospital, a parents’ support group and a series of education and training materials for staff.
Helen Parker, the hospital’s sister for children’s community nurses, who set up and manages the trust fund, said it had been “a long and emotional journey”.
She said: I’m absolutely overwhelmed with what’s been achieved so far and the support the fund has been given. I hope we’ll go from strength to strength so we can continue to support children’s palliative care across Dorset, and continue to empower parents by giving them a choice.”
The Collins family from Boscombe were the first to use the suite to learn to care for their son Will, who was born with a rare genetic muscle condition causing many serious medical complications.
His mum Claudia said they valued the support: “It was a very precious time because having to leave your sick baby in hospital, day after day, is heart-breaking.
“When Will lost his fight for life last year, the family once again turned to Gully’s Place. The support group gave us the chance to speak openly about our loss, something parents like us often feel we can’t do with friends and family.
“The group has shown that we aren’t alone, sadly child bereavement is far more common than we thought.”
* The suite at Poole has been used by nearly 30 families since it opened in 2010 and the bereaved parents’ support group now helps more than 50 families.
For more details visit Poole Hospital’s website at www.poole.nhs.uk/support-us/poole-hospital-charity/gullys-place-trust-fund.aspx
Comments are closed on this article.